If you have a scleroderma diagnosis - you are not alone. In this collection of stories, real patients and carers share their experiences with scleroderma.
Monica’nın öyküsü
Listen to the courageous testimony of Monica, who fought with a severe anxiety to be now enjoying the time spent with her grandchildren.
Mike’ın öyküsü
Follow the story of Michael, who emphasises the role of his family support and how giving up on the old passions made a space for the new things.
Maria’nın öyküsü
Check out how Maria gains energy from her positive approach, spending time with her daughter and cat and not letting scleroderma to rule her world.
Mandy’nin öyküsü
Mandy will walk you through how exploring her creative side and taking things day by day is helping her managing the disease for already 17 years.
Grazia’nın öyküsü
Listen to a brave story of Grazia, who managed to maintain a normal life with a husband, two sons and active systemic sclerosis.
Eszter'in öyküsü
Get familiar with the perspective of Eszter - sister of Anna, diagnosed with scleroderma - appreciate her enthusiasm, sense of humour and determination
Doris’in öyküsü
Even if the diagnosis came to Doris unexpectedly, with support of her daughter she still remains active, working and loves to travel.
Alessandro’nun öyküsü
Read and watch the story of a caregiver Alessandro, who supports on a daily basis his diagnosed with scleroderma mother.
Destek
Living with a chronic illness such as scleroderma can be isolating, scary, and very difficult. Read about how to ask for help and get emotional support.